Signing out

It used to be incomprehensible to me how life could possibly be better with a seemingly important organ completely removed. Had I not been so close to dying, would I have ever “given in” to the doctors?

Here’s the crazy thing. I now have more energy and strength than I’ve had for most of my 12 years with UC.*

For example, one of the things that I believe hastened my decline in ’07/’08 was an addiction to energy drinks. I’d be exhausted every afternoon, so in order to get through the day, I’d give myself a large-can dose of taurine, ginseng, caffeine, and vitamin B. Begin the feedback loop: dehydration and hormone imbalance -> more tired -> energy drink -> dehydration and hormone imbalance….

Before that, things weren’t much better. I’d always assumed that my afternoon slumps and my slight brain fuzziness were symptoms of my bad sleep habits. Now I think that my colon was sapping me of energy regardless of whether or not I was in remission.

Proof? OK…

1. I’ve been regularly operating on 6 hours or less sleep, yet my energy has been consistently up.
2. While previous attempts at consistent exercise tended to leave me feeling better briefly, but tired overall, I now do a full 30-60 minutes 1-2 times per week and feel great.
3. Activities that used to cause me back pain somehow don’t any more.
4. Though I hid it and denied it, I used to have long bouts of depression. I’ve been out of work for so long now that I should still be depressed, but instead I’m taking on several projects at once while still applying for several jobs a week. (Gotta love the economy!)

Anyway, I don’t expect to post here for awhile longer. I’ve got a small bit of rectum left for potential J-pouch surgery, so I still output a teaspoon or two of mucus and/or blood 3-4 times a day. That’s so minor compared with everything I’d been through, that there’s no way I’m going to be taking time to post about it any further. I’m eating whatever I want, taking 0-3 tablets of loperamide, and strong enough to hike, canoe, and throw my 4-year-old into the air despite the growth spurt.

As I understand it, autoimmune diseases drain the body of energy because it keeps the immune system going at full tilt. My choice was to give up the ability to reabsorb water at the tail end of digestion or the ability to stay alive. Not that complicated. But my earlier choice, and the one that thousands of others face, is between draining huge amounts of vital energy through their colons and getting the damn things removed. I wouldn’t go so far as to say that UC sufferers should have colectomies, but I can at least say with confidence that it’s a waste of life to wait as long as I did once the meds and diets and voodoo stop working.

So goodbye, UC, it’s been, well, a pain in the ass. And goodbye colon. It was nice while you functioned, but can’t say that I’ll miss you.

Dark red, though not much separately-visible b. This b is probably from the tearing sensations (aka pre-cramps) I had earlier, which in turn I’ll blame on the Pizza Hut cheese, personal size, from lunch.

It’s harder to pinpoint why these pizzas suck when you get pepperoni. The meat carries it, with the sauce’s help, and you end up duped into thinking it’s adequate. When it’s just bread, sauce, and cheese, though, every ingredient needs to stand on it’s own…but the cheese falls down hard. It’s almost completely flavorless, and that’s despite the little browned, “I was baked,” dots that, upon closer inspection, are too small and uniform to be explained by anything other than a special sprinkled-on browning agent…some sort of salt? I bet these things don’t see anything but microwave ovens after they leave the factory. Blech.

Breakfast: Greek strained yoghurt w/puffed grain cereal.

Lunch: Barney’s chicken strips w/BBQ sauce & curly fries.

Late dinner: pbj.

Brunch: fried egg on buttered toast.

Dinner: Gregoire fried chicken w/fries.

Late night snack: crackers & cheese. (Not fried. Yeesh.)

Small, w/slight burning…from the evening’s tikka masala, or (unlikely, I think) from the open-faced ham & cheddar grilled sandwiches from brunch?

Multi-stager, dark, possibly greenish, w/lots of gas.

Guessing this I what becomes of the “sausage” tortellini with jarred Alfredo on it’s way out. (Lunch, later lunch, and just before bed.) Quotes becausethe flavor and texture of the pasta filling spoke more of ground grain than ground meat. So much for the refrigerator section at Safeway.

Turkey burger and fries comin’ out almost exactly 8 hours later. (Guess I already passed this morning’s buttered toast and the saltines they gave me during my blood transfusion.)

Midnight dinner:
• broth-boiled egg noodles in Bertolli Alfredo sauce
• peanut butter pretzels
• kombucha*

Breakfast: fried egg on buttered toast

Lunch: goat cheese on crackers

Breakfast: bowl of chicken stock.

Lunch: none.

Dinner: 3 saltines in E.R.

Midnight snack:
• 6 pc. chicken fingers w/BBQ sauce
• boxed apple juice
• handful of peanut butter pretzels
• handful of kettle corn